13 Pavements

Friday, November 18, 2011

Updates and Such

Do you love that she is holding lip gloss and a cell phone?  She is so my child.


I have kind of always hated Thanksgiving.  It's probably my least favorite holiday, but I really couldn't tell you why.  But this year?  I'm walking a fine line between excited and nervous.  Excited because the day before Thanksgiving she is getting fitted for her prosthetic eye.  I am so very excited about this.  The actual eye won't be done until sometime in December, but I have been anxious (and very curious) about getting this part of the process started.  Plus!  Her glasses "should" be done next week and that should allow Livi to be more social and get back in the swing of things with her friends, attempt nursery at the church, and all that good stuff Dr. W very sternly told us to avoid.

On the other hand, I'm nervous for her EUA (exam under anesthesia) to check her right eye for for tumors.  They will be checking her good eye every six weeks for a long time to make sure nothing develops.  I have a lot of anxiety about this.  Not the procedure itself, but just the outcome.  Each week leading up to an EUA, I get more worried and more anxious (at this rate, I'm going to need a face lift by the time I'm 30.  Which is in two years.  Do you see the problem there?)  But I'm trying to not let myself go there.  Dr. W doing an EUA so often is a GOOD thing.  Should another tumor develop they can treat it much  more aggressively and save the eye.  She'll also see her oncologist, Dr. P, to recheck the strange blood work she has had the last two visits.  He was a tad on the vague side about what it was that was concerning, so I'm hoping for a little clarification there.

So.  Fingers crossed.

Liv is doing well for the most part.  She is becoming much more aware that her eye is missing, putting a hand over it and just saying, "eye."  She has a few bad days a week and generally is back to her happy self pretty quickly.  It's nothing that a few show tunes, Annie, Lassie, a little car dancing, singing, and lots of snuggles can't resolve. 

Her cognitive skills were tested this week (by the way, CDC.... we love you all of you ladies).  I was called a few days later with the results and she scored above her age level!  (Ha!  Take that 13q deletion that "causes developmental and cognitive delays"!)  I am one proud mama.  The teacher told me I was doing a good job.  I told her it takes a village. 

So, good job, Village! 


video
A little preview of said car dancing and singing.

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